The Winding Road of Invisible Illness
Living with a complex, chronic condition means we have the deck stacked against us. But we can learn from those who have traveled the path before us to make progress in our care journey.
Image from Awesomic will go here or will float behind the title in this section. Image will introduce the viewer to the notion of a twisting, turning, difficult "care journey"
This is the introduction / overview section that gives a bit more explanation about what a "care journey" is and a very high-level run-through of the sorts of challenges that can pop up along the way. Also gives a short explainer of why this page exists (to give voice to patient challenges, to spread awareness, to help doctors and family and friends better understand, to give patients tips/tricks to make their care journey easier, etc.)
This section is also meant to be a segue into the chutes and ladders board, which will immediately follow it
[This is the chutes and ladders board. If possible, we'd be able to let people hover over things to get "tooltip" style explanations of each cell/illustration. And also, for each of those illustrations, we can hyperlink out to the section below that is focused on that ladder/chute. Each of the four "stages" of the care journey are represented by the different shades of green; we'd need some sort of indicator on the board to make the 4 stages clear (Initial Symptoms, Seeking Diagnosis, Seeking Treatment, Maintenance). We could even turn the board into a real chutes and ladders board and sell it in our merch store, or could at least let people print out a PDF version of it. We could tell people that part of the game is that you get 5 "spoons", and if they use a spoon, on their turn of rolling the die, after they roll they can choose to keep their roll, roll again (and replace their original roll), or roll a second time (to tack on to their original roll). The 100th cell on the board could just slide your right back down to the first cell, an ironic nod to the fact that many people end up polychronic (the cell could be "new symptoms start" or "new diagnosis"). Or the 100th cell could slide you right back down to the 81st cell, since patients are perpetually in the Maintenance phase. ]
Care Journey Phase 1: Initial Symptoms
It may be sudden. It may be a slow buildup, hardly noticeable. But at some point, your symptoms will reach a point that forces confrontation. How you handle that confrontation, and the support you have around you at the time, can have a critical impact on the route that your care journey takes from that point onwards. Some of these catalysts are within your control, such as the extent to which you take your symptoms seriously. Others are mostly out of your control, such as the extent to which your friends and family encourage you to take your symptoms seriously.
Inflection Point: Confronting New Symptoms
Catalyst: You accept your symptoms as real
“Back in November 2013, I woke up on a Saturday morning, and I felt like I'd been hit by a truck. And that started my journey. And fast forward to February, 2014 - so, just a few months later - I found a Primary Care physician in Denver. And he got me on the right track”
- Yael | Click here to learn more about Yael’s experience
Inflection Point: Getting Symptoms Checked Out For The First Time
Once you suspect that something may be amiss and determine to do something about it, you truly embark on your care journey. Your Primary Care physician (PCP) is likely to be the first place you turn for help. How your PCP reacts to what you are going through, as well as their knowledge and capabilities, can be the difference between accelerating your path to the right care and taking major steps backward.
Catalyst: Your primary care physician takes you seriously
“I met a new doctor in New Jersey. And the first thing she did was, she was empathetic, which I really, really appreciated. She was able to say: this is what we're going to do, we're going to attack this from all angles.”
- Sarah (Crohn’s) | Click here to learn more about Sarah’s experience
“I highly, highly recommend continuing to look for someone that you feel respected and heard by, and not dismissed by. I think that’s the biggest thing - somebody that’s going to attempt to get to the bottom of things, someone that truly cares and doesn’t want you in pain. It was such a validating experience, my first few appointments where I was crying tears of joy at how helpful and compassionate the care was”
- Marissa (Multiple Chronic Conditions) | Click here to learn more about Marissa’s experience
“But the key was, of course, finding a doctor that was willing to listen to me. And that didn't want to just kind of blow me off as a mom with four kids and someone who was just too busy and had too much stress. So it was, I don't want to say a lot of misdiagnosis, necessarily, as opposed to just not wanting to diagnose me at all. So I would do a lot of things on my own, like my own research and my own talking to people.”
- Michele (Fibromyalgia) | Click here to learn more about Michele’s experience
Catalyst: Your family & friends accept your symptoms as real
“I suspected Fibromyalgia pretty early on, because my mother was diagnosed with fibromyalgia 10 years previous to that. So when she saw me starting to develop symptoms, she was like, Oh, this might be a problem. So she was a huge advocate for me in initially getting me into a rheumatologist as soon as possible to work towards a diagnosis. So I would say it probably took us a few months to get in, and then all the testing began”
- Marissa (Fibromyalgia) | Click here to learn more about Marissa’s experience
"“I had been dismissing symptoms for years, literally years. It was in my late teens and early 20s. I had heat intolerance, like needing to to lie down for 45 minutes after a hot shower. And I just thought, Oh, I'm just tired, I just got overheated. Falling, tripping, being clumsy. On my left shoe, the heel was always more worn down than the heel on the right shoe. So it was sort of years of me being really dismissive and just saying, Oh, I'm young, and I'm busy. And that's what bodies do now… I think a lot of people, when they're younger, they are in denial. Because they don't want to admit it, and they don't want to look at it and are like, Oh, well, I'm young and nothing's wrong. I was dismissive. I focused on my music and on my career as a performer and it was just, I felt like I didn’t have time for that. I kid you not, there were even moments of numbness, in my face or my leg. Or, like, feeling like the top of your lip is wet when it's not, and there's nothing there. Little things like that. I literally just said to myself, bodies I guess, do weird things”
- Brittany (Multiple Sclerosis) | Click here to learn more about Brittany’s experience
“I just kind of wrote it off, because I didn't have a reason to disbelieve doctors yet”
- Jessica (Multiple Chronic Conditions) | Click here to learn more about Jessica’s experience
“I think when you live with a chronic illness, or a syndrome, things go on in your body that you're kind of just used to. And you don't even know, like, hey, this isn't normal. I've had headaches my whole life, or, like, I'm very fatigued all the time. But I didn't know that that was not normal”
- Stephanie (Sjogren’s) | Click here to learn more about Stephanie’s experience
Catalyst: Your primary care physician is able to point you in the right direction
Setback: You downplay or ignore your symptoms
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Setback: Your family & friends deny the validity of your symptoms
“Placeholder”
- Placeholder | Click here to learn more about Placeholder’s experience
Setback: Your primary care physician downplays your symptoms
“I had one primary care physician that didn’t want to do a test. It was just a simple blood test. For three years, I had that doctor, and he never let me do the test. I asked him every single appointment. He kept telling me that it wasn’t a big deal and I was overthinking things. Which made me think that maybe I was overthinking things”
- Karah (Multiple Chronic Conditions) | Click here to learn more about Karah’s experience
“Let me talk about past primary care and present primary care. Past primary care I'm no longer with because that was a very dismissive relationship. He would sit there and just try to talk me into the fact that I had anxiety, I was stressed. One day, he was like, you just need to get on anxiety medicine, this will solve everything. And he even went down the path of talking about how I’m a woman and I have hormones and this sort of thing happens. And I remember I was furious when I walked out of there. I remember the door was a little loose, and I opened it really, really hard, because I was so upset. And I was like, this just isn't working. This is not the primary care relationship that I want going forward. Because he's not listening. He's trying to talk me into something that is not accurate. And I ended up leaving their practice. An endocrinologist that I was working with was really disappointed in what my primary care doctor was doing and how he was managing everything. So she found another primary care doctor that she had worked closely with and told me he’d be a good match. And he has been really great.”
- Patient With Multiple Chronic Conditions | Click here to learn more about their experience
“I had a deep fatigue that no doctor was ever, ever able to explain. They always said, you're a teenager, or you have depression. Which, yeah, I did have all those things. So they wrote everything off. And for years, I just thought that's what it was…. And then when no answers were really coming back conclusive, I went back to my primary care doctor. And she said, at some point, you have to start thinking that it's probably all in your head. And I was like, I've been dealing with OCD since I was eight years old. So I know anxiety, and I know the difference between anxiety and what's not anxiety, you know what I mean? So when she said that, I was so angry. And I had been going to her since I was 18 years old, so almost a decade at that point. So I was devastated. I never went back to her, obviously. That was the first of the medical gaslighting that I was going to experience… Of course, anxiety can worsen an already existing condition. So the two things can exist together, which some doctors don't really understand. It's like, oh, you have anxiety. And it's like, no, I have anxiety and I have something else going on.”
- Jessica (Multiple Chronic Conditions) | Click here to learn more about Jessica’s experience
“My primary care doctor ignored things for so long and did not take me seriously. She was hesitant to test my thyroid, she said my TSH was normal. And so then she felt foolish when my antibodies came back, you know, 400 plus, and that's supposed to be like, 10, or something”
- Patient With Multiple Chronic Conditions | Click here to learn more about their experience
“I was starting to feel kind of off, and I brought it up to my pediatrician at the time. She was like, oh, no, it's fine. Just growing pains”
- Effie (Rheumatoid Arthritis) | Click here to learn more about Effie’s experience
“Some doctors appreciate when you start speaking medical jargon. But some doctors are like, “who, you think you know everything, back up” and they are kind of dismissive”
- Emily (Sjogren’s) | Click here to learn more about Emily’s experience
“I went to my doctor and I was like, something's wrong with me. I just don't feel good. I think I have Fibromyalgia. And he started laughing and saying you don't have Fibromyalgia. So, I just pushed on through”
- Jennifer (Multiple Chronic Conditions) | Click here to learn more about Jennifer’s experience
“I talked to my doctor and just kind of told him that I was tired and you know, just the normal run of the mill not feeling 100%. And at the time, I had two boys and we were trying to have another baby. And the common thing that was basically told to me was that well, you're a mom of two boys that are really active, so of course you're going to be tired. So it was like, Oh, well, you know, you should just kind of rest if they're like still taking a nap or if they're at school. So I kind of just struggled my way through the day”
- Lorie | Click here to learn more about Lorie’s experience
Setback: Your primary care physician isn’t able to set you on the right course
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Care Journey Phase 2: Seeking A Diagnosis
[Short opening paragraph with explanation about the stage and a high-level description of the main challenges. Short opening paragraph with explanation about the stage and a high-level description of the main challenges. Short opening paragraph with explanation about the stage and a high-level description of the main challenges. Short opening paragraph with explanation about the stage and a high-level description of the main challenges. Short opening paragraph with explanation about the stage and a high-level description of the main challenges. Short opening paragraph with explanation about the stage and a high-level description of the main challenges. Short opening paragraph with explanation about the stage and a high-level description of the main challenges. Short opening paragraph with explanation about the stage and a high-level description of the main challenges.
Inflection Point: Getting Help
Catalyst: You find reliable medical information that sets you on the right course
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
Catalyst: You find a relevant specialist
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
Setback: You don’t have the resources to know what next steps to take
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Setback: You cannot find a relevant specialist
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Catalyst: Your specialist believes you
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
Setback: Your specialist downplays your symptoms
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Catalyst: Your specialist recognizes your symptoms and sets you on the right course
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
Setback: Your specialist doesn’t set you on the right course
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Catalyst: There is a biomarker to indicate the presence of the suspected disease
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
Setback: There is no definitive biomarker for the suspected disease
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Catalyst: The test proves conclusive
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
Setback: The test is inconclusive
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Catalyst: Just a few other conditions must first be ruled out
Setback: Many other conditions must first be ruled out
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Catalyst: You don’t need to see additional specialists
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
Setback: Your specialist passes you on to another specialist… who passes you on to another
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]
Inflection Point: Seeking A Specific Diagnosis
Catalyst: You give your doctor the complete, unfiltered rundown of all your symptoms
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
Setback: You censor your testimony to avoid overwhelming your doctor
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
"A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic. A relevant quote about this topic.”
- Janelle D. (Crohn's, Rheumatoid Arthritis)
Click here to learn more about Janelle's experience
[[This concluding text would have a set of tips and tricks and watch-outs pertaining to the above topic, and would link out to relevant resources. One type of relevant resource could be to link out to a Slack channel just for this specific challenge, or a Google Doc or something simple to let people help each other with tips and tricks and answers relating to questions that people might have about this specific topic]