Chronic Thoughts

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What’s the “Chronic Illness Tax”?

Living with chronic illness isn’t just about managing symptoms—it’s about constantly paying a price that others don’t see. It’s the financial burden of medical care, the time lost to navigating a broken system, the energy spent calculating every decision, and the emotional weight of always having to justify our needs. This is the “chronic illness tax”—a relentless, invisible toll that we pay every single day just to exist.

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Signs Your Mental Health Is Improving

Living with chronic illness can take a toll on mental health, but recognizing small signs of improvement can offer hope. In this post, we explore the subtle shifts that indicate your mental well-being may be improving, even on the tough days. We also provide practical tips to nurture your mental health, plus resources and validation for those navigating the complexities of chronic illness. Whether it’s recognizing small wins or learning how to be kinder to yourself, this guide offers support and encouragement for every spoonie.

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Habit Stacking Tips for Chronic Illness

When you live with chronic illness, every day can feel like a balancing act. Energy is limited, mental fog is constant, and even the simplest tasks can feel like mountains. Whether it’s remembering to take your meds, getting out of bed, or just making sure you drink enough water—sometimes, it’s hard to keep up.

That’s where habit stacking comes in. If you’ve ever heard of this concept, you might already know it’s about pairing a new habit with something you already do. It sounds simple, but when you’re living with chronic illness, those simple strategies can be life-changing.

In this post, we’re going to dive deep into the concept of habit stacking, how it can help simplify daily tasks, and why it’s particularly helpful for those managing chronic illness. We’ll also talk about how to get started, give you real examples to try, and offer tips for staying consistent—because we know, with chronic illness, it’s easy to fall off track. So let’s get started!

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What You Should Know About Multiple Sclerosis

March is Multiple Sclerosis (MS) Awareness Month, a time dedicated to raising awareness, dispelling misconceptions, and providing support for those living with MS. While MS is a widely recognized condition, many people are unaware of its complexities, varying symptoms, and the latest advancements in treatment. In this post, we’ll cover what MS is, common misconceptions, symptoms beyond what’s typically discussed, and valuable resources for patients and caregivers.

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Why Autoimmune Disease Awareness is So Important

March is Autoimmune Disease Awareness Month—a time to shed light on the complexities of living with an autoimmune condition, raise awareness about the realities patients face, and advocate for better research and support. With over 100 known autoimmune diseases affecting approximately 50 million Americans, these conditions are more common than many people realize. Yet, despite their prevalence, autoimmune diseases are often misunderstood, misdiagnosed, and overlooked.

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Navigating Rare Disease and Why Awareness Matters

Rare Disease Day, recognized annually on the last day of February, is more than just a day of awareness—it’s a global movement to shine a light on the unique struggles of the rare disease community. With over 7,000 known rare diseases affecting millions worldwide, this day brings attention to the urgent need for research, early diagnosis, and better treatments.

For many, living with a rare disease means facing years of uncertainty, misdiagnoses, and medical gaslighting before finally getting answers. The journey to a diagnosis is often long, frustrating, and emotionally exhausting. Let's explore why the diagnostic process is so challenging and what can be done to im

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Understanding Post-Exertional Malaise (PEM)

For many living with chronic illnesses, particularly ME/CFS, long COVID, POTS, or other conditions, this is a harsh reality. The body responds to exertion with more than just tiredness—it crashes in a way that leaves you feeling wiped out, even after a long rest. This phenomenon is called post-exertional malaise (PEM).In this post, we’ll dive into why PEM happens, how it differs from typical fatigue, and, most importantly, how to manage it.

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Turning Small Moments Into Big Progress with Chronic Illness

Living with chronic illness isn’t just about surviving day-to-day—it’s about navigating a maze of challenges that can feel endless. Sometimes, it’s easy to feel defeated when the big changes aren’t happening, and the struggles feel constant. But in reality, it’s often the smaller, more subtle victories that keep us going. Whether it’s getting a long-awaited answer, gaining the courage to advocate for yourself in a doctor’s office, or managing to take care of yourself during a flare-up, these moments are important. They’re the little victories that can move the needle forward and, over time, lead to bigger changes in how we cope, manage, and thrive. So, let’s dive into some of these small wins, with practical tips and real-life examples, to show you how they can make a meaningful difference in your life.

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Finding Easy Ways to Nourish Yourself with Limited Energy

Navigating nutrition while managing chronic illness can feel overwhelming. When energy is limited, cooking from scratch or planning balanced meals may seem impossible. But with a few thoughtful strategies, it’s absolutely possible to fuel your body and get the nutrients you need—even when relying on convenience foods, delivery, or meal services.

Here’s how to get essential nutrients like protein, vitamins, healthy fats, and fiber with minimal effort, plus why these nutrients are so important for your health.

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How to Identify Your Energy Drainers and Gainers with Chronic Illness

Understanding what drains or restores your energy is key to feeling your best. In this blog, we explore practical tips for identifying energy drainers and gainers in your life. Learn how to spot patterns, create balance, and prioritize activities that help you recharge. Protect your energy and set boundaries so you can feel more in control and refreshed every day.

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Integrating Traditional & Modern Medicine for Chronic Illness Management

When managing a chronic illness, it can often feel like you’re walking a tightrope. On one side, there’s the structured, evidence-based approach of Western medicine; on the other, the holistic and integrative philosophies of Eastern medicine. The good news? You don’t have to choose just one. By combining these practices thoughtfully, you can create a personalized care plan that meets your unique needs.

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25 Mantras to Take into 2025

A new year often brings a sense of renewal and reflection. For those of us living with chronic illness, the concept of a "fresh start" can feel complicated. While we can’t leave our conditions behind on December 31st, we can bring tools into the new year to help us face its challenges with compassion and resilience.

Mantras—simple, meaningful phrases that ground and guide us—are a powerful tool. They don’t promise miracles or “good vibes only,” but they remind us of truths that can be easy to forget in the whirlwind of daily life.

In this post, we’ll share 25 mantras to inspire, validate, and motivate you throughout 2025. Along the way, we’ll explore why mantras work, how to integrate them into your life, and additional ways to cultivate a mindset that supports your well-being.

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